Tuesday, April 8, 2008

lotsa docs!

We were at the hospital yesterday from 9:30am - 5:30pm, and then back today for a consultation with a kidney specialist after lunch. Needless to say, I am glad I don't have to return until Friday. Yesterday, we began the day with a CT scan, followed by the normal blood labs and a visit with Dr. Hill, and then I had to get infusions to increase my magnesium and decrease my potassium, both of which worked for now.
We discovered I had lost about 9 lbs. in the past week, and am now down to 184. I was told that I need to force myself to eat more often (at least 5 times/day), and was encouraged to eat pretty much anything that looked/sounded good to me. It was strange advice for me, but I understand the intent. They are not terribly concerned about my weight yet, but really don't want me losing any further weight. I was told to go for the gusto on ice cream, shakes, pudding, smoothies, and pretty much anything with high protein and calories. We also figured out that part of my stomach distress at night may be stemming from the fact that I take 12-15 pills just before going to bed, and have been doing it on an empty stomach. Last night, I tried eating a little something with it, and had no problems, so hopefully that problem has been solved.
The kidney specialist today looked at my numbers, which have been consistently high for a week now, but said there's not a whole lot we can do to change it, and for now, we should just watch and wait and hope they eventually come down and don't go any higher. I do have to do one other test on the kidney, but it hasn't been scheduled yet.
I am feeling quite a bit better, and have more energy than I did even this weekend. I was encouraged to hear Dr. Hill say that if my lab numbers are good enough this Friday, we could look at going from 2x/week visits to weekly visits! I also found out that we will not see any results from the bone marrow biopsy until at least Friday. Keep praying!

1 comment:

Anonymous said...

I haven't been keeping up with how you're doing. I have been thinking about you lately and was wondering how you are doing. I'm glad you've been able to find some comfort in change in diet...I wish someone would tell me to eat as much ice cream as I want:) I will be praying for you. Hopefully I'll see you this summer since I'm coming home after graduation. God Bless. (By the way, I can't believe how big your kids are getting!)